Question

What ethical concern regarding genome data is specifically mentioned in the ELSI section?

Options

• Genome data should be controlled exclusively by governments

• All genetic information should be made publicly available

• Genetic information must be handled with privacy and confidentiality

• Genetic testing should only be performed on wealthy individuals

Answer 1

According to the Ethical, Legal and Social Issues (ELSI) framework of the Human Genome Project, genetic information must be handled with privacy and confidentiality. This protection is essential because misuse of genome data may lead to discrimination in insurance, employment, or social treatment, and genetic knowledge should be applied responsibly without stigmatizing individuals or communities.